Lily was born May of 2012. She was 5 weeks early and was born with a complete bilateral cleft lip. To our surprise, her palate was intact. She was started on NAM treatments to align her gums more at 5 weeks of age. We did weekly appointments for NAM along with all the other cleft appointments and baby appointments. She had surgery to repair her lip October 24, 2012. It went beautifully. She had bone graft surgery March of 2020 (right before the craziness of the pandemic, like days before). She is 9 years old and has only had these two surgeries due to being able to use the NAM. She is active in Volleyball, Basketball and Dance.
"We are so grateful for the Mia Moo Fund. The NAM was paid out of pocket by us. Between that, and all the appointments, and time off we had to take, it was a financial burden for sure. Not only did Mia Moo help with that, but we have made life long friends with the family, and so many other cleft families. Thank you for all you do!" Kari (Lily's mom)